Held at Ashmark Farm, New Cumnock. 11am start with a £15 entry fee.
< p>All classes catered for, with A, Mixed and B routes available.Ther e will be a raffle held with all money going to the Cystinosis chairty.
Please take a minute to read the information written by Emma & Stevie Gu ild whos daughter lives with this disease.
Erin Guild wa
s born a happy healthy wee girl in august 2008, approaching her 1st birthda
y Erin stopped thriving, she was sick, thirsty and in a lot of pain. Doctor
s initially thought it was a virus or infection then eventually we got refe
rred to hospital where the first thought was diabetes.. After numerous hosp
ital appointments at Crosshouse, a consultant who had worked previously at
Yorkhill spoke to us about a case he had seem identical to Erin’s.. and tha
t’s when our journey with Cystinosis began, Erin being only 14 months old.<
br />Cystinosis is a metabolic disease caused by a build up of cystine whic
h stops cells from working properly therefore prevents the organs from work
ing properly – Initially the kidneys and eyes, but will move onto muscles,
pancreas and brain. The cause of this condition is genetic and only approx.
. 200 sufferers in the UK and only approx.. 2000 worldwide.
To keep Er
in as healthy as we can for as long as we can she has a strict medicine reg
ime; medication at 6am, 8am, 8:30am, 12pm, 3pm, 6pm, 8pm, 9pm then midnight
. All the medications are different and the side effects can make her feel
very yucky. She also has eye drops and a medicine which gets administers th
rough a gastrostomy straight into her tummy. Erins bloods are closely monit
ored every 10 weeks and a kidney transplant will probably be required, but
for now e are so grateful that her kidney function is stable.
We are v
ery lucky that Erin – now 11 – is mobile and very active and I so determine
d that this condition will not make her different – taking the bad days wit
h the good days. Erin ALWAYS has a smile on her face.
The cystinosis f
oundation is run by volunteers ensuring that all money raised goes straight
to the research pot, aiming to find better treatment and ultimately a cure
! Good progress with medications and how often they will be taken, are bein
g made so far.
We are very proud of our daughters bravery and continuo
us positive attitude to life, with the determination and strength to get th
rough every day.
CONTACT:Heather Anderson 01659 50137 DTSTAMP:20260428T025226Z DTSTART:20191215T080000Z SEQUENCE:0 TRANSP:OPAQUE END:VEVENT END:VCALENDAR